Pre-Meeting Clinical Workshop
Monday, 7 July 2025
8:30 am - 3:30 pm
Hypereosinophilic Syndrome Pre-Meeting Clinical Workshop:
Novel Tools for Translational Research in Rare Eosinophil Associated Diseases
The Pre-Meeting Clinical Workshop is not included in the regular registration rate and can be added for an additional fee during the registration process.
Session I: Introduction |
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8:30 am – 8:45 am |
Welcome and Workshop Objectives |
Amy Klion, United States |
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8:45 am – 9:00 am |
2023 IES Pre-Meeting Workshop Review and Recommendations |
Florence Roufosse, Belgium |
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9:00 am – 9:15 am |
International Multicenter Registries: Rewards and Challenges |
Guillaume Lefevre, France |
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9:15 am – 9:30 am |
Outcomes Measures and Biomarkers: Guiding Principles for Regulatory Approval |
Tiina Urv, United States |
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9:30 am – 9:45 am |
Machine Learning and Artificial Intelligence in Rare Diseases: Promise and Pitfalls |
Paneez Khoury, United States |
Session II: Enhancing Diagnosis and Clinical OutcomesModerator: Matthieu Groh, France |
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10:00 am – 10:30 am |
Clinical Decision Support: Approach to Rare Disease Diagnosis and Treatment |
TBA |
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10:30 am – 11:00 am |
Research Proposal Presentations |
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Session III: Computer Vision (Imaging)Moderator: Simin Zhang, United States |
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11:00 am – 11:30 am |
AI Innovations in Rare Disease Research: A CT-based Diagnostic Algorithm in Idiopathic Pulmonary Fibrosis |
TBA |
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11:30 am – 12:00 pm |
Research Proposal Presentations |
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Session IV: BiomarkersModerator: Manali Mukherjee, Canada |
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12:30 pm – 1:00 pm |
Novel Biomarkers: Cell-free DNA from Science to Practice |
Sean Agbor-Enoh, United States |
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1:00 pm – 1:30 pm |
Research Proposal Presentations |
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1:30 pm – 2:00 pm |
Focus Group Discussions |
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Session V: Conclusions |
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2:15 pm – 3:15 pm |
Presentations by Focus Groups |
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3:15 pm – 3:30 pm |
Summary and Action Items |
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